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House Co-Sponsorship Memoranda
House of Representatives
Session of 2015 - 2016
Regular Session
MEMORANDUM
| Posted: | February 3, 2016 10:18 AM |
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| From: | Representative Thomas P. Murt and Rep. Dan Moul |
| To: | All House members |
| Subject: | Restoring Governor Wolf's Budget Veto for Tourette Syndrome Alliance Funding |
| In the near future, we will be introducing legislation that would restore the very nominal funding that was allocated to the Pennsylvania Tourette Syndrome Alliance, based in McSherrystown. This critically important funding was recently eliminated as part of Gov. Tom Wolf’s veto of House Bill 1460 (Act 10A of 2015). Gov. Wolf vetoed the very minimal amount of $153,000 which was allocated for this important mission. Tourette Syndrome (TS) is an inherited, neurological disorder characterized by tics – involuntary, sudden movements, or vocalizations that occur repeatedly. Tourette Syndrome cases range from mild to severe and many people with a mild case of Tourette Syndrome often go undiagnosed. In these cases, the person’s tics are usually mild and can easily be disguised, masked or suppressed. In some serious cases, a person’s tics and associated disorders can keep one from independently functioning in society and need assisted living for life. Of course, most cases fall somewhere in between, requiring some level of assistance such as advocacy, medical treatment, counseling, social skills training, accommodations and/or learning supports. The Pennsylvania Tourette Syndrome Alliance is an organization which advocates for families who have a family member with Tourette Syndrome. This organization does a great deal of work in supporting families all over Pennsylvania. Most of their work however, is in advocating for school children and their families who are going through due process with their local school district and are struggling to get the accommodations and supports they need for their child who has Tourette Syndrome. These families cannot afford a lawyer nor a professional advocate, and badly need the services of the Pennsylvania Tourette Syndrome Alliance to advocate on their behalf and on behalf of their child. The final debate regarding the budget continues on, but these families and these Pennsylvanians who suffer from Tourette Syndrome should not be pawns caught in the middle of this incomplete budget struggle. Please join us in sponsoring legislation that restores this critically important funding to the Pennsylvania Tourette Syndrome Alliance. |
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| View Attachment | ||
Introduced as HB1868