PRINTER'S NO. 2385
No. 1921 Session of 1999
INTRODUCED BY McILHINNEY, ARGALL, BARRAR, BELARDI, BELFANTI, BISHOP, CAPPABIANCA, CLYMER, CORRIGAN, COSTA, DeLUCA, FAIRCHILD, GRUCELA, HARHAI, HENNESSEY, LAUGHLIN, LEDERER, LEVDANSKY, MELIO, R. MILLER, MUNDY, RAMOS, SATHER, SCHULER, SERAFINI, SEYFERT, SHANER, STABACK, STEELMAN, STEVENSON, E. Z. TAYLOR, J. TAYLOR, TIGUE, TRAVAGLIO, TRELLO, WILLIAMS, WOJNAROSKI AND YUDICHAK, OCTOBER 5, 1999
REFERRED TO COMMITTEE ON HEALTH AND HUMAN SERVICES, OCTOBER 5, 1999
AN ACT 1 Establishing the Universal Newborn Hearing Screening Program. 2 The General Assembly of the Commonwealth of Pennsylvania 3 hereby enacts as follows: 4 Section 1. Short title. 5 This act shall be known and may be cited as the Universal 6 Newborn Hearing Screening Act. 7 Section 2. Legislative findings and purpose. 8 (a) Findings.--The General Assembly finds as follows: 9 (1) Deafness in newborn children is a serious concern 10 because the first few months of a child's life are a crucial 11 period in the development of speech and language skills which 12 depend heavily on hearing acuity. A delay in these skills may 13 adversely affect the child's social, emotional, cognitive and 14 academic skills development. Advancements in hearing aid
1 technology have made it possible to provide hearing 2 amplification devices to children as young as two months. 3 These technological advancements, coupled with early 4 intervention, can result in improved language development, 5 increased academic success and ultimately in improved 6 lifetime earnings. 7 (2) Many hospitals have developed hearing testing 8 programs for newborn children who meet certain high-risk 9 criteria. However, this type of high-risk-only testing misses 10 between one half and three quarters of all newborn children 11 with a hearing loss. The average age at which a hearing loss 12 is identified in the United States is between two and two and 13 one-half years of age and can be as high as five and three- 14 tenths years for children of low-income families. 15 (b) Purpose.--The purpose of this act is to provide for the 16 early detection of hearing loss in newborn children, to enable 17 these children and their families to obtain needed treatment and 18 intervention services at the earliest opportunity and to prevent 19 or mitigate the developmental delays associated with late 20 identification of hearing loss. 21 Section 3. Definitions. 22 The following words and phrases when used in this act shall 23 have the meanings given to them in this section unless the 24 context clearly indicates otherwise: 25 "Department." The Department of Health of the Commonwealth. 26 "Health care provider." A health care facility or health 27 care practitioner as defined by regulations of the Department of 28 Health. 29 "Health insurance policy." Except for specified disease 30 policies, the term shall mean any group health insurance policy, 19990H1921B2385 - 2 -
1 contract or plan or any individual policy, contract or plan with 2 dependent coverage for children, which provides medical coverage 3 on an expense-incurred service or prepaid basis. The term 4 includes the following: 5 (1) A health insurance policy or contract issued by a 6 nonprofit corporation subject to 40 Pa.C.S. Chs. 61 (relating 7 to hospital plan corporations) and 63 (relating to 8 professional health services plan corporations) and the act 9 of December 14, 1992 (P.L.835, No.134), known as the 10 Fraternal Benefit Societies Code. 11 (2) A health service plan operating under the act of 12 December 29, 1972 (P.L.1701, No.364), known as the Health 13 Maintenance Organization Act. 14 (3) An employee welfare benefit plan as defined in 15 section 3 of the Employee Retirement Income Security Act of 16 1974 (Public Law 93-406, 88 Stat. 829). 17 "Parent." A natural parent, stepparent, adoptive parent, 18 guardian or custodian of a child. 19 "Program." The Universal Newborn Hearing Screening Program 20 administered by the Department of Health. 21 "Secretary." The Secretary of Health of the Commonwealth. 22 Section 4. Universal Newborn Hearing Screening Program. 23 (a) General rule.--In order to assist parents and health 24 care providers in determining whether a newborn child has a 25 hearing loss requiring treatment, the department shall establish 26 the Universal Newborn Hearing Screening Program. 27 (b) The program shall consist of, at least, the following: 28 (1) A hearing screening test that every newborn child 29 shall undergo for identification of newborn hearing loss. The 30 hearing screening test may be performed by any person 19990H1921B2385 - 3 -
1 properly trained to do so. 2 (2) The test shall include the use of at least one of 3 the following technologies: auditory brain stem response 4 (ABR), automated ABR, otoacoustic emissions (OAE) or other 5 appropriate technology. 6 (3) A health care provider may provide the newborn 7 hearing screening test on site, contract for the test with 8 another provider or enter into other arrangements for the 9 test upon approval by the department. 10 (4) The test shall be completed, when possible, before 11 discharge from the hospital newborn nursery unit. The test 12 results are to be conveyed to the custodial parents, and are 13 to be included as part of the child's health care record. 14 (5) If the test is not done before discharge from the 15 hospital newborn nursery unit, it should be conducted within 16 90 days of birth and the hospital shall be required to notify 17 the parents of the need to have the newborn child tested 18 within 90 days of birth. 19 (6) The notice in paragraph (5) shall be developed by 20 the department and shall notify the parents of all of the 21 following: 22 (i) The department encourages the testing of newborn 23 children within 90 days of birth. 24 (ii) If the test is conducted within 90 days of 25 birth, the parents' health insurance policy or medical 26 assistance may cover the fee for the test. 27 (iii) The department can recommend health care 28 providers who can provide the test for the newborn child. 29 (c) Refusal of test on religious grounds.--No test is to be 30 performed if a newborn child's parent dissents on the ground 19990H1921B2385 - 4 -
1 that the test conflicts with a personal religious belief or 2 practice. 3 Section 5. Hearing testing insurance coverage. 4 (a) Insurance coverage for testing.--Except as provided in 5 subsection (d), any health insurance policy which is delivered, 6 issued for delivery, renewed, extended or modified in this 7 Commonwealth by any health care insurer shall provide that the 8 health insurance benefits applicable under the policy shall 9 include coverage for initial testing and for any necessary 10 follow-up testing. 11 (b) Delivery of policy.--Except as provided in subsection 12 (d), if a health insurance policy provides coverage or benefits 13 to a resident of this Commonwealth, it shall be deemed to be 14 delivered in this Commonwealth within the meaning of this act 15 regardless of whether the health care insurer issuing or 16 delivering the policy is located within or outside this 17 Commonwealth. 18 (c) Cost-sharing provision.--Benefits for the newborn 19 hearing screening test shall be subject to copayment and 20 coinsurance provisions of a health insurance policy to the 21 extent that other medical services covered by the policy are 22 subject to those provisions, except that benefits for the 23 newborn child hearing screening test shall be exempt from 24 deductible or dollar limit provisions in a health insurance 25 policy. This exemption must be explicitly provided for in the 26 policy. 27 (d) Exemption.-- 28 (1) Notwithstanding subsections (a) and (b), this 29 section shall not be construed to require a health insurance 30 policy to include coverage for the newborn hearing screening 19990H1921B2385 - 5 -
1 test for an individual who is a resident of this Commonwealth 2 if the individual is employed outside this Commonwealth and 3 the individual's employer maintains a health insurance policy 4 for the individual as an employment benefit. 5 (2) Nothing in this act shall apply to accident only, 6 specified disease, hospital indemnity, Medicare supplement, 7 long-term care, or other limited benefit health insurance 8 policies. 9 (e) Applicability.--This act shall apply to all insurance 10 policies, subscriber contracts and group insurance certificates 11 issued under any group master policy, delivered or issued for 12 delivery on or after the effective date of this act. This act 13 shall also apply to all renewals of contracts on any renewal 14 date which is on or after the effective date of this act. 15 Section 6. Coverage under medical assistance. 16 The Department of Public Welfare shall pay for the newborn 17 hearing screening test if the child is eligible for medical 18 assistance under Article IV of the act of June 13, 1967 (P.L.31, 19 No.21), known as the Public Welfare Code. 20 Section 7. Regulations. 21 (a) Secretary of Health.--The Secretary of Health shall 22 promulgate regulations as may be necessary to implement the 23 provisions under section 4. 24 (b) Insurance Commissioner.--The Insurance Commissioner 25 shall promulgate regulations necessary to implement the 26 provisions under section 5. 27 Section 8. Effective date. 28 This act shall take effect in 90 days. E10L35SFL/19990H1921B2385 - 6 -