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House Co-Sponsorship Memoranda
House of Representatives
Session of 2013 - 2014
Regular Session
MEMORANDUM
| Posted: | April 23, 2014 09:23 AM |
|---|---|
| From: | Representative Tarah Toohil |
| To: | All House members |
| Subject: | June 2014 as "Cockayne Syndrome Awareness Month" |
| Memorandum In the near future, I plan to introduce a House Resolution recognizing June 2014 as “Cockayne Syndrome Awareness Month” in the Commonwealth of Pennsylvania. Cockayne Syndrome (CS) is a rare genetic disorder characterized by poor growth, premature aging, sensitivity to sunlight, moderate to profound developmental and neurological delays and a shortened lifespan. In order for a child to be affected by CS, he or she must inherit a mutation in the same CS gene from both parents. Once parents are known carriers, they have a 1 in 4 (25%) chance of having another child with CS. There is currently no known cure for CS. Therefore, I am introducing this resolution in hope that it will increase awareness across the Commonwealth about this condition. Please join me in cosponsoring this important resolution. Thank you for your interest and support. |
Introduced as HR857